Status update, second to last.., only for Nostr enjoyers π»
I am still suffering from never ending phantosmia, and the latest experiments showed no signs of improvement. This week again I was forced to stay in bed for 50% of my time, fighting with seizures. Even having one right now, hanging my head 180 degrees rotated from the side of the bed, while writing this text. Next year my WG friends will move to a different place and I can't follow them. Since my financial situation only has gotten worse I am realistically speaking game over.
Over the past months couple people, even from this community and OpenSats, contaced me regarding work, but all my answers take 4 times as long as people expect. As the weeks come and go, and i am seeing how little I am able to do, I wonder how I ever could be able to make them happy and how working for them would reduce my suffering. People have absolutely no idea how bad my health situation is. So my OpenSats request is still in draft, and while I really want to submit it, in the same time I fear that it would just be an absolute waste of everybodies time, since I am neither a Bitcoin, nor a Nostr maxi π« . Positive news is that I joined the Solidjs fellowship, helping on the work for the next SolidStart version π!
Meanwhile Switzerland just accepted E-ID and all I can think of since last sunday is how I could leave this failed country, with no money and instead with a damned disability that nobody ever has heard of.
Call me a doomer, but I think my last hour has come.. Anyhow... keep stacking, even if it is cardboard under a bridge π. Have a sunny friday π€.
Replies (21)
i'm sorry to hear about this.. what is this, when did it start?
I get a times phantosmia but its not regular. Is it a side effect of an illness or you cant find a source? I suffer from cervical dystonia since very young so I get all these crazy sensory overloads all the time. I have a constant high pitch in my left hemisphere... its crazy... I do hope you get to the bottom of it. β¨οΈπ€ wish you healing β¨οΈπ€
π€β¦π€
It started more than ten years ago and got much worse over the time. And I tried countless ways to heal it π.
Phantosmia is when you have sensations of bad smell - the bad smell doesnt exist, but you still can smell it. Its very disturbing. In my case it also affects food and drinks.
Oh no π, cervival dystonia sounds painful as well π, how can you work like this π?
I cannot find the source, been searching since ten years π.
Is cervival dystonia treatable or do you have to live with it βΊοΈ?
Thank you for your sympathetic words π«
Nah there is no cure. Just management. I have a lot to deal with on daily basis but hey I am alive thats what matters.
Did you ever tried sniffing coffe grounds when having phantosmia?
Have you tried marijuana edibles? Iβm sure this sounds crazy but it helped my brother with his seizures.
Yees and no, I tried space cakes π
, does that count?
Thats the way, and since you are on Nostr, you are probably more alive than most human beings these days π
Sniffing is one of the many ways to actually trigger the seizures π.. But thank you for the idea βΊοΈπ
Staying away of middle east is doing amazing in keeping me extra alive... π€£β¨οΈπ₯³ thats for sure. And for social media ... tbh... never changed much in my brain... im quite well grounded in real life... Nostr is fun π and I like fun and laughter... βΊοΈπ
Not in every case. You can rewire your sense with strong scents like coffe beans ...
I just know how it is when you are trying everything to help yourself but nothing seems to work... π€£ im also living it π₯³πβ¨οΈ
Do you use a special way to sniff it? Is it a deep sniff, or more like a "front" one? And do you sniff with both nose holes? π
All good βΊοΈ, you just tried to help π, and i like to hear new ideas even though I am also very tired at the same time, because everything I try only seems to make things worse π.
Welcome in the club π«ππ
Hehehe... yeah I know... it came to my mind after i wrote it... cuz a times I feel the same... and I also did try so many stuff people recommended amd a times you do just get tired of it. For coffee I think its just placebo... you gave me an idea to test if it actually is... next time ... but just wondering which kind of smells do you feel? Mine are blood, iron and burning electricals... you know that wire burning smell π₯΄π΅βπ«
Feeling honoured ππ€£π₯³β¨οΈπ
Hang in there katja. I am dealing with unexplainable burnout aftereffects that has no known cure but feels curable. So I just keep trying and am slowly improving. Keep searching for yourself to. Some say life gives you challenges that you can overcome, and in times like this its a nice saying to hold on to.
If only the hallucination smelled nice. Uncontrollably smelling fresh baked cookies would have been life changing compared to your version.
As for the issue of turnover time, maybe code bounties? Those you cash on completion so there is no time to complete as long as you do them first. Some of those arent contested heavily.
